Fletcher and Harveys

A very happy BELATED birthday to Laura!!!!!! We hope your day was a happy one but we know you are counting down til your daddy comes home! We shall see you on Friday!!! But many happy returns for last Sunday

So 3days until we get to 31 weeks.,..,,. something that for Fletcher’s pregnancy seemed so hard to get to! All is well with new bub, and I dont even know what to write to everyone.

We have 8 weeks to go…………….

Fletcher still moving around in his walker.. pity the walker has trolley wheels that make him go all over the shot!

AUnty Natalie arrives for a fleeting visit on Friday which will be nice.

Fletcher still going to day care on Fridays. His OT his due to visit there and make some arrangements for equipment to help Carmel out.

Mum is looking after me soooooooooooooooooooooooo much and making sure I look after myself. Here is a link to how I have been feeling of late… http://jacobburton.wordpress.com/2007/04/14/supine-hypotensive-syndrome/

something that nothing can be done for apart from sit slightly tilted to one side, and lay on the left where possible,……….,

We have our front garden done and plants are going in slowly.

Fletcher’s 2nd round of botox booked for Aug and he will be seeing some ortho surgeons to discuss options before this time… fingers crossed that meeting goes well.

Not sure what to say, im a little tired and havent had a nap today! Fletcher did!! I didnt! I think, these days I am needing them more than him!!

Hope you are all well!
Shall talk sooooooooooon

Love Kristina

Wow, what a storm, hail that was massive…  anyway, new photo’s of Fletcher painting and his day out on the boat (which Daddy stayed well away from).

It’s been a while would you say.,. since you last heard from me. I thought it would be a good a time as ever to say ‘hello’ and wish you all well.

Well I have been a good little boy of late. I had (as you read from daddy) my first round of botox.. and wow what a brave boy I was if I do so say myself. Hang on, mummy and Nana both thought I was EXTREMELY brave aswell!! I got about 6 needles I think, mummy and me were NOT COUNTING! But I did well… The effects?? I hear you asking,……. well people who have been around me have said that my legs seem looser and not as rigid. And when I stand in my AFO’s I am actually attempting movement, something I wasnt doing prior to my botox. The official interpretation of the effects of the botox will have to wait til we go back to the clinic.

I (along with mummy, nana and poppy) were very priviliged to spend a lovely day on the Swan river with our friends Gerry, Svetlana and Sabina. You will have to check on mummy’s facebook page to see the pics as Im not so clever anymore at adding photos on my blog. Maybe if I ask daddy nicely he may add them for me on here. We sailed up and down the river and I even dangled my feet over the side of the boat to paddle in the water. Mummy wasnt brave enough to take me in with the jelly fish!!

Poppy just returned from a short stay in NZ to visit my Great Pop, who is doing very well Poppy reports.

Mummy has got 5 weeks left at work before she starts her maternity leave. She is feeling ok, wouldnt rave about the good feeling factor but is glad to have each day with my new baby. Mummy was reminded  today of the precious gift of life.. when a mum in her class told her she had her child at 24weeks., jsut where mummy is the moment… it made her rub her belly and thank God for giving every new day with #2..

I am still going to daycare on Fridays and Nana still looks after me on Tues and Wed!

Daddy is well, working hard on all his work projects,. but he does come home very grumpy at times hehe….

No dilatations for a while, and my next doc appt is not even scheduled yet, except if my dentist counts, which is on Thursday.

I know I am waffling on, but I hope this post gives you a little insight into my life at the moment!!

The name game is still going and mummy and daddy have only agreed on one!!! So apart from Nana and Barb we will keep that one quiet just incase. Altho Barb hopes it’s not a matter of just incase.. lol

Hope you are all well,…

Big hugs toyou all..

Love Fletcher x  x x

So today was the day, Fletcher turned up at PMH nice and early (on time even), what ashame the rest of the process wasn’t on time… world class hospital system, NOT… but it is what it is.

Since I wasn’t there, this is the general gist of what went down, Fletcher drinks some stuff to knock him out (yeah right… that was always going to work), anyway… so that gets sorted, he becomes lethargic and away they go, a few needle pricks later all done, and then it’s recovery mode.

I rock up (with lunch after driving to meet Tia for her doctors appointment… thinking it was 12:30pm, when it was actually 3pm), anyway… so turn up in Vic Park, say hi to the little fella and eat some tucker (he was looking very tired and Nanna managed to get him asleep, yay).

Fast forward to later  this evening, I rock up after work at Nannas and Poppys and he’s looking a lot happier, etc… apparently it takes 4 days or so for it to take affect, so he’s got some little bruises and we’ll see what happens in the coming days.

So all in all, mission accomplished… results pending…

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PS: iPad could become available for purchase this evening, watch the online applestore (it’s either that or new model macbook pros…)

So what’s new this week… we’ll Fletcher and Kristina are at PMH tonight for a sleep study (only 5 months after we initially started the process…), I’ve just pulled the cot out of the garage again and rearranged the spare room (I guess it won’t be too spare soon) and it’s just me, Holly and the cats… yay.

We received some great information from a guy at Cryosite about stem cells and their current research, I quote:

“The use of cord blood stem cells to treat cerebral palsy is not routine in Australia or elsewhere in the world. The German companies that offer the therapy for CP do not do so as part of the standard health care system and also notably do not seem to have published any scientific papers regarding the results of this type of therapy.

There is a very reputable clinical trial taking place at Duke University in the United States under the Supervision of Dr Joanne Kurtzberg using umbilical cord blood to treat CP (http://www.foxnews.com/story/0,2933,573265,00.html).  Dr Kurtzberg’s contact details can be found at the following page (http://www.dukehealth.org/physicians/joanne_kurtzberg).

In my opinion, this kind of clinical trial appears to be scientifically sound and could lead to therapies that may show promise for the future. However, the trial is ongoing and no results are yet in the public domain.“

So that was really good, there was more, but he took a lot of time to write a detailed reply for which we are grateful for.  In other news, trying to find landscapers to redo the front of our house… easier said than done but it’s long overdue and we’ll see what they can come up with for a scrimping budget lol.

Anyway, until next week, you all take care… the great name debate continues for addition number 2… suggestions so far:

- Atickas (what the… NO)

- Mitchell (mmm, NO)

There were others… they were so bad I can’t remember them…

First looks at Fletcher’s….

So, we just had the 19/20 week scan… and all looks well (unlike the last time), so for now it’s just a matter of counting the weeks and fingers crossed progress remains normal.

Anyone for icecream?  What else happened this week, we’ll the iPad came out… (personally iSlate) would have been a better name, but I think this thing has potential to help kids with disabilities and the price is cheap compared to other disabled kids products… time will tell, but we are definitely in the queue.